Tuesday, January 26, 2010

10 Weeks Later


The Irony of deciding to update my blog today is all's been well until today. This is the first day I've felt some reoccurring facial weakness. Here's a quick report on my progress.

PAIN- Every once in a while I can feel my jaw muscle ache when I smile or eat. My temple area is still very sensitive with some swelling Other then that no pain.

VISION- Is good, I can see as good as I did prior to surgery. The only thing I can notice thats a result from surgery is my right eye is always a little dry.
HEARING- GONE! This is the hardest part to get used to. There's been an increase in the volume level of my tinnitus with a lot of new sounds (clicking, screeching, heartbeat, clicking, etc). When in a loud room such as a room without any sound absorbing objects, the only thing I can hear is the loudest thing in the room. I also cannot tell what direction the sound is coming from. It's really hard to talk to anyone under those conditions. The thing that's the most upsetting is listening to music. It's just not the same, it seems to have lost it's depth. Now all music sounds two dimensional and I get discouraged when I pick up and play my guitar, it just doesn't sound right.

BALANCE- Better. Not anywhere close to where it used to be but much better. I'll have an occasional momentary laps of balance, but I'm getting used to them and I'm able to roll with it and regain my composure without anyone noticing. Moving backwards still needs some work. My new test for myself is to walk as straight as possible while turning my head back and forth. Try it.

FACIAL WEAKNESS- Being paralyzed on my right side for a few weeks I'm not complaining about a thing. That was the scariest part of this recovery, wondering if I would ever have use of the right side of my face again. I'm very fortunate that my facial nerve functions close to where it did before surgery. I can feel that the movement is not quite symmetrical. The right side does not move as good as the left. It feels stiff. But I'm not complaining, I know I'm fortunate.
THE SCAR- It's heeling very well and if you were walking by me you probably wouldn't notice a thing. I can highly recommend Dr. Bien's cutting and suturing. Being a person who shaves his head I still cannot use a razor over the raised scar just yet. It's still the electric razor for a while. It also appears that some of the skin is dying within the circle. There some brown blotchy spots on the skin within the circle.

COGNITIVE ISSUES- I feel great compared to a few weeks ago but, I still feel like I'm in a slight haze, not that bad just a little slow. I've noticed that my speech seems to be effected by this. Some words seem to be slurred or not there in the middle of a sentence. I'm hoping that because I have been in recovery away from people. That my communicative skills have gotten a little rusty.

To sum it up.
I went back to work last week and everything went as good as it possibly could have. In the last two weeks I've made some huge improvements. I feel that I'm getting very close to finding my new normal. It's really amazing how far I've come in the last two weeks. There's not much if anything that I can't do now that I could do before surgery. I feel that I've turned the corner.

Mike.


2 comments:

  1. Mike,
    I'm happy to hear your optimism about your recovery even though you've realized that some things will never be the same. I know what you mean about music being two dimensional now and I worry whether I'll ever have the same appreciation for it as I used to. I hope that with time we'll get used to the way music sounds to us now and not feel like we're missing anything. I'm sorry to hear that your tinnitus has gotten louder, but I admire your ability to not let it bother you too much. Sometimes I wonder how much of tinnitus awareness we can control ourselves and I continue to struggle with it being a daily frustration for me. I'm glad you're back to work and doing all the things you were able to do before surgery. I really enjoyed your story and pictures about getting your mobility back. I have yet to try a bike or any wheels besides my car at this point. The hearing loss, tinnitus, and facial weakness/pain are all conditions that no one wants to deal with, but like you, I realize it could be so much worse. We are all forever changed by our AN experience, but we will move forward with more appreciation for life than we had before diagnosis. I'll continue to think of you and hope we can all share more successful updates in the future.

    You are very strong and I'm sure you'll continue to improve over time. Congrats on being back to work and your life completely after only 10 weeks. That is something to celebrate!

    Amy

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  2. Hey, it's been a couple weeks since your post, hope you are doing even better!!!! Hopefully work isn't dragging you down or throwing things back at ya like it has done for some.

    I'm checking out others posts today and need to get my own update on my blog....oops.

    Take Care!!!
    Denise :-)

    OH, have you ever thought of hearing devices? Just getting others thoughts on that subject too!

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